“My cancer was Ewing’s Sarcoma, a very rare bone cancer. My cancer was localized to my right humerus. In the summer of 2016, I had my first symptoms which consisted of small amount of pain and swelling to my humerus. Then the pains were not continuous but there was pain every month and the bump grew. On January 10, 2017, the pain came back and this time it was unbearable, I suffered terribly. My parents decided to take me to the Emergency Room and I had an x-ray of my arm and a blood test done. We spent the night in the hospital and were then transferred to another hospital for further examinations. I underwent a biopsy of my arm, I had a scan, and a MRI. All of this was done not even within a week. Five days later, I was told that I have cancer, an Ewings Sarcoma. I was only 13 years old! Another five days later, I had surgery to put an implantable chamber site, a gastrostomy and for the ovaries.”
“January 27, 2017 I received my first dose of chemotherapy. I did the Euro Ewing treatment. This treatment has 3 parts (if all goes well). The first part has 6 courses of chemotherapy, each course lasted 3 days. I had vincristine, ifosfamide, mesna, doxorubicinn and etoposide phosphate.
The second part was the operation, I had an arthrodesis. The surgeon put my fibula in place of my humerus. I do not have all my mobility and my arm is well deformed; I am considered about 20% handicap.The third part is a consolidation course, it includes 8 courses of chemotherapy, each course lasted 24 hours. I had vincristine, dactinomycin, cyclophosphamide and mesna.”
“I had a lot of side effects: I had nausea, tiredness, I had to use a wheelchair and I had more than 20 blood transfusions. …but I finished my treatment on January 4th 2018. I am now in remission !!!”
“During the treatment, I had only one thing in mind! It was to survive. Some things helped me during the treatment, I went to my grandparents’ house by the sea, the change of air is extremely good. My parents sent me massages every night. My mother was very present, I was with her all day and even at night. I did what made me happy, I watched a lot of horror movies, I ate everything I wanted at any time, it was really great! Especially do what makes you have the most fun in these difficult times, it’s really important.”
“I will give you some advice, I do not want you to make the same mistake as me. During the treatment, I did not want to see my friends, I did not want them to see me like that and now I regret not having wanted to have fun with them because after the treatment, I had problems socializing. Despite your change of appearance, do not worry about others, even if it’s very difficult, live your life even with the disease, show cancer and others that you are the strongest and fight!”
Chloé Duflos 🇫🇷