Warriors With Wings

#LoveLikeEmi

“Emily was diagnosed 11/26/14, the day before Thanksgiving, at age 4 with a SPNET (Supratentorial Primitive NeuroEctodermal Tumor). Emily had been misdiagnosed with allergies after suffering debilitating headaches for a few months, we pushed the pediatrician until she agreed to order a CT scan. After her CT scan Emily was sent straight to the emergency room. Emily had a brain tumor and was transported via ambulance to Kaiser Sunset, where she had surgery the day after Thanksgiving.”

“Thankfully there were no complications and by the grace of God, she was talking, walking and was discharged.  Three weeks later, doctors found the tumor had grown back.  Emily started chemo on New Year’s Eve, having a total of 6 rounds of chemo at Children’s Hospital Los Angeles and 30 rounds of radiation to the brain and spine. She was in remission for almost 2 years when she had scans in July of 2017 showing an area of enhancement.”

“On August 16, 2017, after having a seizure and being airlifted to CHLA, the area of enhancement showed growth causing her to relapse. Emi had a resection August 2017 in hopes that an immunotherapy trial with the University of Florida would save her life. While awaiting for her life saving shot, she reoccured 4 months later, the 4th tumor bled in Dec 2017 and she was put in observation. She had a 4th resection and started the immunotherapy trial. Just 3 months later she reoccured for a 5th time. During that 5th and final surgery, she suffered a stroke in the operating room, they induced a coma in hopes that the swelling in her brain would go down. During surgery the surgeon found out that the tumor had spread and there were now multiple tumors causing blood to be pulled to a different part of the brain and that caused the stroke. After a week of tests after tests, they declared her brain dead and she had to be taken off life support.”

“Emi gained her wings on March 27, 2018 at age 8, leaving us all heart broken and lost, but her legacy will live by inspiring others to love the way she did, to #LoveLikeEmi”

Story told by mother: Olivia Jarquin

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