The night our son was diagnosed with cancer, was the first of many nights that I did not sleep. I stayed up that night fervently searching the internet for childhood cancer survivor stories of other children with my son’s same brain tumor. Thankfully I came across other families who had shared their children’s cancer journey online.I even reached out to two other mothers that night to help shine some light on what our journey might entail. Even though I am a registered nurse and spent a year working on an adult oncology unit, any possibly information you may already know goes out the window the moment you hear “your child has cancer.” Both of those mothers replied to me within hours of me sending them a message and I cannot express enough how thankful I am for their words of encouragement, being so open about sharing their own personal journey and being that light of hope that I needed when all else was darkness.
While we were still inpatient with our son, his dad and I found a Facebook support group page called “Parents of kids with Medulloblastoma.” This is a private group of parents all around the world with children who have been diagnosed with this type of brain tumor. This page has served as a platform for parents to share their experiences, fears, valuable information they have obtained,their victories and ask questions. It has been an outlet for so many to be able to connect with other parents in the same situation, because who else truly understands what you are going through than them. Regardless of what type of cancer you or your child may have, I assure you there is some type of support group out there for you to connect with. It does not necessarily have to be online, some you may find within the hospital or out in the community. I highly encourage you seek this type of support, it truly helps to connect with others who are currently dealing with the same diagnosis or have already been through this journey. Although loved ones are always great support and much needed, these individuals will connect with you in a way no one else will be able to. They share your exact fears, questions, doubts, anxiety and so many other emotions.
In the days that followed after our son was discharged home, his dad and I also decided that I would create an Instagram page to document our son’s journey. We decided it would be the best way to be able to keep our family and friends up to date instead of trying to answer hundreds of text messages or phone calls on a daily basis. As much as we wanted to personally thank everyone for all their thoughts and prayers, it was truly overwhelming for us as we were inundated with messages. For me,creating the Instagram page also meant that I would be able to carry a timeline of Anthony’s journey and have it serve as a fragment of my memoir during this time of our lives. Early on we did not realize what an impact our son’s Instagram account would have on others, to the point of reaching thousands of people worldwide who have following his story along with us.
These social media platforms have truly made way for us to connect with other families dealing with childhood cancer. It is honestly one of the things that have helped me cope and hold on to hope and my faith during times fear has tried to settle in. These individuals know exactly what you are going through and will be one of your most important pillars of hope, knowledge and strength throughout this journey. We have even been blessed to meet some of these families and their cancer warriors in person which have become like family.
Once you walk the path of cancer, the journey is truly never over. Now that our son has completed his treatment and is in remission, I feel that it is our turn to pay it forward and be an inspiration of hope to others who perhaps have just been diagnosed, are in treatment,in remission or even relapsed. In addition to that, the next following pages are cancer survivor stories of other warriors. Everyone you meet along the way will leave an imprint on your soul and we all have something that we can take away from others. Sometimes we simply need a reminder that everything will be okay and someone out there has been in your exact shoes. I hope this space serves to give you that extra bit of hope you made need and make this journey an easier one to walk. After all, no one fights alone!
*If you have a cancer survivor story you would like me to share, please send it to me here.